When we left I kinda knew we weren't going to 'speak to the Senate' ala Dee Snyder and the PMRC hearings... but I still hoped something like that would transpire. It didn't. It was still exciting to have 'tea' (okay, it was just coffee) with a Texas Senator, then run from building to building in the tunnels of DC to meet with our constituents. Everyone we met with seemed open to listening to our story and why we need them to support specific appropriations (funding) -- through the Department of Defense (who knew?!?!) and Labor, Health and Human Services to further research and trials for childhood cancers. We also asked them to support funding for the Caroline Pryce Walker Act that was passed unanimously for childhood cancer research as well as support for the childhood cancer research caucus.
At first Mike and I were very emotional, then by the end of the day we were like, "Look, here's our story, yes, the numbers aren't in our favor but you can't deny the human factor, and that kids with cancer are being left out of NCI and NHI research and funding. It's unfair, and you can change it." Some Legislative Director's and Assistant's seemed excited about our story but when we left Mike and I wondered if we really made an impact. As we left one office to meet the next representative we were stopped in the hall by an assistant to let us know they had already heard from two or three of the people we already met with and wanted more information about our appropriations! That was really cool to hear something within minutes. Now we wait and see what happens next....
We came home Wednesday and in the morning we are off to Costa Rica for a few days -- with 40 of our closest friends. We leave tomorrow -- early -- and you know I'm not a morning person -- so I better get going. I hope to update more while we are on our trip.
4 comments:
It's been a long long time. I just found out about Johnny from a fellow skater last night. Please never hesitate to come out and stay with us whenever you can.
I don't have words to express what I am feeling. Your strength and spirit just completely blows me away.
Love
Colin Garrett
Oahu, HI
We all know that your message did not go unheard!!! You guys are truly amazing and I hope you enjoy your vacation to Costa Rica!!!
Aimee
Julie and Mike,
Sometime it only takes one person to make a difference. Look at the difference Johnny made in so many lives. Just by going to DC, you got some face time with people that we the public elect and if we don't like what they do, they probably won't get re-elected. I know you have made a difference already and I think about you a lot. Have fun on your trip and keep the faith. Johnny is smiling down on you.
Brenda
Jules,
You and your family have already done so much for so many, keep up the good work. Johnny continues through you.
Love Carla
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