If Johnny does well for the next 24hrs. the doctors will send us back up to 9!!!! Although side effects/reactions can happen up to 2-3 weeks later -- the critical time is usually the first hour and if that goes well usually the rest will too.
Mike and I talked to our doctors for a long time last night. Mainly about AML and how different it is from ALL -- unfortunately AML is very resistant to chemo, whereas ALL seems to respond well to treatment. Right now, Johnny's numbers are trending in the right direction -- DOWN. Except for his blast count. I'm really hung up (okay, obsessed!) on that count because it hasn't budged much the past few days. The doctors reassured me to not worry because there are other markers they use to determine remission.
We all want the numbers to be ZERO, but there is always the chance it might not happen. IF we stay on course, day 29 will be somewhere around 9/2 -- and will be the day for possibly the last BMA and LP to see where he stands. If he's in remission, then Johnny starts the 'conditioning' process before transplant which usually lasts 5-10 days. If he's not in remission, there is one more drug that might be able to help get him there, then to transplant.
But again, I'm jumping W A Y ahead. Let's see how this week goes before I make any future plans. Keep him in your prayers!
hugs to all