If Johnny does well for the next 24hrs. the doctors will send us back up to 9!!!! Although side effects/reactions can happen up to 2-3 weeks later -- the critical time is usually the first hour and if that goes well usually the rest will too.
Mike and I talked to our doctors for a long time last night. Mainly about AML and how different it is from ALL -- unfortunately AML is very resistant to chemo, whereas ALL seems to respond well to treatment. Right now, Johnny's numbers are trending in the right direction -- DOWN. Except for his blast count. I'm really hung up (okay, obsessed!) on that count because it hasn't budged much the past few days. The doctors reassured me to not worry because there are other markers they use to determine remission.
We all want the numbers to be ZERO, but there is always the chance it might not happen. IF we stay on course, day 29 will be somewhere around 9/2 -- and will be the day for possibly the last BMA and LP to see where he stands. If he's in remission, then Johnny starts the 'conditioning' process before transplant which usually lasts 5-10 days. If he's not in remission, there is one more drug that might be able to help get him there, then to transplant.
But again, I'm jumping W A Y ahead. Let's see how this week goes before I make any future plans. Keep him in your prayers!
hugs to all
jules
11 comments:
johnny is always in my prayers.
the name of the new drug is pretty intriguing--'GEMTUZUMAB'...frontwards or backwards, it sounds kind of spunky !...like your son.
xx
carla isbell
carla isbell design studio
Johnny and gang....
ALWAYS in our thoughts and prayers!!! I'm ready for a 9th floor visit (wearing my SUPER cool shirt)! Be sure and tell me how great I look in it (it's ok to lie to me...I'll believe anything!)
PS...Julie, we've had several donations on the TNT website over the last couple of days (with everything you have going on in your life right now you still find time to do charitable things...damn you're good....thank you!!!)! Jacob is so excited...the entire family is. He's so looking forward to participating in honor of Johnny (he actually asked me if they would let him SKATE in the marathon...I told him, "only if you'll pull me behind you!")!
Sending all of our positive energy and love your way!
Coach Holly
Hiii my names fernando lescano jr and I am 16 years old
And I was reading my skateboardmag and I was reading the news section and I saw the "rallying behind johnny romano" and I read on and I looked it up
And I also was diagnosed wit A.M.L lukemia on july 1 2007 and I recently on april 8th relapsed,I just got thru my transplant,I'm in loma linda hospital still here but if u can send me an email I'd really appreciate,because I would like to be there for johnny also or if he has any questions about wuts gonna happen I'm here because I understand how hard it is for both my parent and for me but wen I talk to someone who's goin thru the same thing it kinda helps
Here's my emails if ur interested in contacting me
Question0926@tmail.com
Junyaa@yahoo.com
Just email me if you'd like to talk
Thank u.
Hiii my names fernando lescano jr and I am 16 years old
And I was reading my skateboardmag and I was reading the news section and I saw the "rallying behind johnny romano" and I read on and I looked it up
And I also was diagnosed wit A.M.L lukemia on july 1 2007 and I recently on april 8th relapsed,I just got thru my transplant,I'm in loma linda hospital still here but if u can send me an email I'd really appreciate,because I would like to be there for johnny also or if he has any questions about wuts gonna happen I'm here because I understand how hard it is for both my parent and for me but wen I talk to someone who's goin thru the same thing it kinda helps
Here's my emails if ur interested in contacting me
Question0926@tmail.com
Junyaa@yahoo.com
Just email me if you'd like to talk
Thank u.
Jules,
Just touching base...how cool is it that this kid, Fernando, has reached out to Johnny! Probably nothing like chatting with a guy who's been through, and going through, the same stuff you are, AND has the skating frame of reference. Just wanted to remind you that you're all--as always--tucked away in hearts and prayers. love you, cy
Who names these drugs? Were they on drugs?! Keeping you all in my prayers and thoughts.
Jules, I have a weeks vacation coming my way, so if you need me to come down and help out for the nine days I would have, I will. I'll give you a call later.
Love Kathleen
I can't put my thoughts together but let me just tell you that you guys (Johnny and Co.) have strengthen my faith and hope. Even at this terrible times the love that your family and frieds has and have share shines brightly ever so brightly. GOD Bless Y'ALL!
and fer sure my prayer are with all of you and with Fernando!
"I tell you, keep asking, and it will be given you. Keep seeking, and you will find. Keep knocking, and it will be opened to you. For everyone who asks receives. He who seeks finds. To him who knocks it will be opened..."
Luke 11:1-13
C,
Jeremiah 29:11-12
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
May God contine you give you strength Johnny...we are praying for you daily. I can't wait until my girls are old enough to meet the real live superhero, Johnny Romano!
Horacefields :)
I'm hoping the best for all of you.
If you're going to be taking up space in Candlelight Plaza, atleast you could put up a half-pipe and invite some old friends over.
Hey Johnny, just remember, your dad might not be as famous as you or Tony Hawk, but he was ripping huge aerials long before you were born. Get well so you can break some equipment.
Craig Allen
Big John,
I remember that Crazy Craig and he's right about your Dad. I also remember when those two would skate, hop and jump over everything. I thought they were nuts! But they sure looked like they were always having fun even when they were jaming their knees and elbows with big splinters.
Much love Johnny,
Uncle george
Post a Comment